I had brain surgery for blocked ventricle

by Bea
(Waupaca, Wisconsin)

I've had problems with my nerves, shaking, sweating and anti social since I was 11 years old. After a few years I started falling down after standing up and had brain surgery when I was 20 years old and was told there was a blockage of scar tissue in ventricle that kept the protective fluids from surrounding my brain. They said the blockage could have been from an injury or I could have been born with it. Could the blockage have caused damage to my nervous system and that's why I was put on medication for my nerves after surgery? I was taking the medication, Xanax, since then,1982, and after 31 years have been cut off the medication and cannot function as a normal person. Withdrawals from quick discontinuation of Xanax are very painful and I'm back to shaking and very nervous all of the time. I never took Xanax to get high but it helped me to function as a 'pretty close to normal' person. Now I can't go out in the world without the medication but no Doctor will prescribe it and all other medications they've tried to put me on have made me sick or more shaky. Could the blockage have returned? Should they give the Xanax back to me? Should I have another x ray of my brain? I had a Pneumoencephalogram done before brain surgery and am glad for others that they don't do them anymore. Except in some cases. Headaches after the Pneumo were extremely bad for days afterwards.
Doctors just tell me they don't care about the surgery and don't care that I no longer have a life. I know Xanax is addictive but I also know my body needs it to function. I choose to say that I'm dependent on Xanax.
Brain Scans and possibly more surgery or Xanax or both?
HELP! PLEASE!

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I had brain surgery for blocked ventricle

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Jan 26, 2013
?????
by: Anonymous

What's the problem, if you find something that helps why take it away.
I have a bad back and take Morphine for it, it's a cheap price and it helps me have a somewhat fair life.
I've tried the pain patch and it costs way too much and leaves me pain free sometimes to where I could hurt myself and I want to keep my pain level around 3 to 4.
If the Xanax gives her a little life then why take that away from her?
I know doctors are trying to phase out Xanax and try other drugs for people but if Xanax works for some people why punish them by taking it away?

Jan 24, 2013
Xanax withdrawal.
by: Anonymous

If you check around, you will see that what you are experiencing is typical of benzodiazepine withdrawal. I suggest reinstating and withdrawing slowly (no more than 10% per drop. Get another doctor if all you get is silence from this guy. He is hurting you but thinks he is helping you because Xanax is addictive. What he doesn't understand is that your neurology is now dependent on the drug and no body just stops once addicted. 10%drops are the standard for any psychotropic drug (medicine) withdrawal. The doc doesn't know, not his fault but know that he isn't aware of the correct withdrawal for this drug. You NEVER just stop or you end up with the symptoms you are experiencing.

Your best resource is yourself, it is worth researching this so YOU know what you are dealing with.
And
Recovery road
Benzo.org.UK

There are mor but these will get you started.

Jan 24, 2013
Thanks
by: Bea

Thanks for the comments and suggestions. I'm still going crazy and wondering if I'm gonna survive this sudden cut from the medication that gave me a life and am having alot of pain and can't leave my apartment because of panic.
Dr. Flanagana, you're probably right about having another brain scan. When they did the Pneumo I didn't know they drained the CSF to get a clear picture of the brain. The Neuro Surgeon that did the brain surgery is retired and I have no idea what Dr. I can see to recommend another brain scan. CT. not Pneumo. I've mentioned it to the new Dr.(G.P.) that took the Xanax away but he didn't say anything. I don't want to need the Xanax but it's the only thing that let me have a life and a good job, a house and give my sons everything they ever needed. I've been thinking the blockage might have already done irreversible damage and that's why I'm so dependent on the pills.
I'm so confused and scared.

Jan 24, 2013
Blocked Ventricles and Orhtostatic Hypotension
by: Dr. Flanagana

Hello Bea,
Blockage of the ventricles can cause normal pressure hydrocephalus (NPH). Among other things, NPH has been associated with manic depression and schizophrenia. It can also affect the autonomic nervous system and cause orthostatic hypotension and drop attacks (falls). The blockage you had in childhood may have done permanent damage or the CSF flow problems may have returned. It would be a good idea to have your brain scan updated to check for enlargement of the ventricles and flow problems. Depending on what is found, there may be some manual medicine and surgical options.

Jan 20, 2013
Xanax is a culprit
by: Anonymous

Please know that your problems are due to xanax addiction. Research the web for information. I was addicted to Ativan, another benzodiapepine and it took 11 very slow months to withdraw. Without proper withdrawal you end up suffering like you are.Do your research...England is further ahead on this subject. That is where I got help.

Jan 16, 2013
Xanax info!
by: Alice

Whoever took you off Xanax without weaning should be punished severely! It is dangerous to do so. I would get all the correct information about weaning off benzodiazepines ( the drug family of xanax ), get your doc or another one on board, reinstate and wean properly.

My Facebook site Benzo Beware has links of places to go for information. There is a star link about how to get a doctor for weaning. Mainly you have to educate them because we have found their is great ignorance on this subject!

You should never have been told to just stop! I can't believe it.

You are supposed to switch to Valium, it is easier to wean from. There are charts telling you how to do this. Then you wean very slowly. It took me 11months to get off Ativan via Valium. It was very scary but I did it and now I am back to normal. Some people takes years, some get off quickly, but these drugs are highly addictive and the symptoms of withdrawal are the same as the reason you got on them which makes you think you still need the drug.

My symptom was anxiety and panic attacks all night. The drug did help me but when I was better, getting off the drug gave me the same symptoms so I switched to Valium and went slow. It worked and it is all over. If you require more help or websites to visit for the information, write me. My journey started at benzo.org.UK. You see Dr. Heather Ashton is the only real doctor who had a clinic and did studies about how to wean off of these drugs.

You don't have to suffer with the correct knowledge! Alicot@ comcast.net

Alice

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